Nope – Health Update

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Well here’s another update in my continuing health saga since getting the Flu back in December of 2019.

Had to return to the doctor a week and a half ago because you guessed it, bronchitis and sinus infection were still not gone. This time I knew I was going to have to change to a different antibiotic and for me, this is a scary thing. You see, back many years ago when my body starting freaking out because of contracting Lyme Disease, suddenly I had food allergies and medication allergies that I never had before. They’ve stayed with me all these twenty-five years.

I am on antibiotics a lot because of my RA. Most people believe that Rheumatoid Arthritis is just pain but it’s so much more than that. It can affect every organ and system in your body. Over the last four years or so I have stuck with Zithromax in liquid form because of my Achalasia . Check out the highlighted word to see what that is. I guess in December my body decided that it has had enough of that medication and it seems to have only partially worked. I am more than likely almost immune to it now and when that happens it means hunting for another that I can tolerate.

I chose Biaxin in liquid form because I remembered years ago I was on that for Lyme Disease and I didn’t seem to have an issue with it then but I also had to keep in mind, back then I was able to take it in pill form. I figured it doesn’t matter because my only concern is that I’m not allergic to it. Turns out by the grace of God I am not and I was able to take it. I was on for about five days and the side affects set in. The nausea was off the charts and lasted all day and night which I was dealing with because after all it was working. Next came the lousy taste in your mouth this medication seems to produce. That also stays with you and it makes everything you try and eat or drink taste funny but again, I dealt with it because I needed too.

Lastly came the abdominal pain. This is where I reached the end of my tolerance for this medication. I normally have a lot of abdominal pain and this just ramped it up one hundred fold. By day six ? I couldn’t handle the pain anymore and so I stopped it. For now, I seem to be better. I never realized what a strong medication that is so I am praying that all I needed was those five to six days but I guess we shall see. In the meantime I will research drug classes and see what else is out there that I can possibly tolerate.

That’s it for now. I will have a new post up soon.

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Health Update

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Hello again friends,

In this post I am bringing you my promised health update. I try to make my posts short and to the point but sometimes they can be a tad long so I hope you’ll grab your favorite drink, settle in and have a read.

Continue reading “Health Update”

Stop, Let Me Off

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Oh how I wish life would just stop throwing curve balls.  There never seems to be any length of time where things are quiet, serene, boring. I would give much to have that for a long while. 

Most of my readers know my husband suffered a heart attack back in 2016. Since then it’s been an emotional and frightening roller coaster ride. One thing after another with his health, questions, unknowns, uncertainty, relief, anxiety, fear etc. I’ve walked on eggshells for the last nineteen months every single day and this past month has been no exception. Since Oct of 2016 my husband has suffered from fluid retention (edema) in his right shin and ankle of what we were told was ‘unknown origin” except that he has what is called diastolic heart failure so it was probably from that but, ‘not dangerous’. This past month he began complaining of chest pain (different from his heart attack pain) and shortness of breath. Off to the cardiologist we went. 

Another heart catherization was set up. For those who don’t know what that is, its where they thread a small camera up a main artery, in this case they went through my husbands right wrist, directly into the heart so they can see the arteries etc. We were told the stent placed last year was wide open, the other blockage he has is actually reversing itself and all was well that his chest pain and shortness of breath were non – cardiac. 

A week later I came down with the dreaded Flu which settled in my top teeth and then caused a horrific tooth abscess on top of the flu with it’s fevers, muscle pain etc. Last week was a pretty tough week physically for me because it has also made my rheumatoid arthritis flare as well . 

Last week we also saw our regular MD to talk about what could be happening with my husband. Our MD sent him in for a CT scan of his chest and lungs on Thursday. He was concerned about a blood clot in the lungs or worse. Such as lung cancer, COPD etc. To say it was a long emotional weekend would be an understatement. The results came in today, Monday. Seems, thanks be to God, he doesn’t have any of the above but what he does have is fluid in his lungs to go along with the fluid in his abdomen, shin and ankle. Yes, we were told the heart was fine and this is pretty much what I looked like when I got off the phone with our MD’s nurse. 

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I called the cardiologist right away. After a few phone calls back and forth with me explaining to the nurse that our MD says the fluid is coming from his heart failure, (my husband has diastolic thickening and dysfunction) the cardiologist has now started my husband on a double dose of Lasix (water pill) as of tonight and then regular dose each day until we see him along with sending us an order for blood work to check his kidneys as water pills can be hard on the kidneys and dangerous all the way around. 

Oh, in the middle of all of this, we also saw my husbands pain doctor. For those who don’t know, he has had 9 back surgeries since 2005 and has horrible nerve damage in his spine. He began testing at the pain doctor for an internal stimulator to be implanted soon but now, that’s on hold until we can get this edema (fluid retention) under control along with the chest pain and shortness of breath. 

As I am writing this tonight, the pain in my hands from the RA is pretty intense despite my medication and I am sitting atop of my bed, all dogs around me and two on the bed, all sleeping. No television, no music, no YouTube videos playing.  In silence because at this very moment that’s what I need. Silence. Someday’s I just want the train of life to stop and let me off.

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Worried

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Yes, that pretty much looks like I do right at the moment.  Just a quick back history for those who aren’t familiar. In April 2016 my husband suffered a heart attack. God decided it wasn’t his time yet and he came out of it pretty well. Fast forward a few months and my Mr began collecting fluid in his feet, ankles and lower legs. 

For almost a year we tried figuring this out. We ran almost every cardiac test you can run with the exception of a catherization because my Mr. didn’t want to undergo that again and honestly, I couldn’t blame him. All tests were showing fine. There was what we have been told a ‘minor’ issue with his heart but nothing dangerous and nothing to worry about. 

Just last month I “thought” we made a breakthrough. His water pill and blood thinner were removed from his medication regiment and suddenly the fluid went away. We could finally see his feet and ankles again.  I was incredibly relieved and incredibly grateful. 

Well, it seems to have been short lived only this time it’s not anywhere near as bad as it was. My husband is now collecting fluid again in his lower legs. Not in his feet yet nor his ankles just a small area in both lower legs with the right one being worse than the left. This is how it’s always been.

Two months ago his blood work showed a slight elevation in his kidney levels so I am going to call our family doctor on Monday to make an appointment and have the test run again. It amazes me that his problems all seem to have begun with the heart attack more than a year ago but we are told the heart attack did not cause any damage to the muscle. 

Once again, I am confused and feeling very worried. Scared actually.  My Mr is my whole world, my life and I have been full of fear and worry for over a year. Every time I think we are on the right track another softball is lobbed straight at my skull. 

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I know I need to trust in the Lord and believe me, I am trying. I am trying incredibly hard but the truth is I am scared and I am frustrated that I can’t seem to give this 100% to the Lord and know that He will take care of things. Again I ask you, please keep us in your prayers. 

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